Month: November 2010

Waaaaaaitingggggggggggg

I just received the appointment for my risk assessment follow up.  12/21/10.  It leads me to think that risk assessments are not of an urgent nature like CT scans and the like…it doesn’t FEEL urgent to me, but it DOES feel like information I’d like to have.  Making the decision about participating in a risk assessment felt like a sort-of-kinda-medium-big decision on a scale of really small to really big.  Even though I was put in a low risk catagory, the actions I might take if I were to come up positive for the BRCA 1 and BRCA 2 genes, are fairly major.

Before I published this entry, I received a call this afternoon offering an earlier appointment for the risk assessment results.  Apparently Dr. Genetic Specialist works only one day a week at the Cancer Center, which I was unaware of.  Even so, I’ve been given a 12/7 appointment…that’s next week.  I think I can do that.  BTW, all is going well.  I feel well.  My hair continues to curl and make me smile every day.  I’m a little itchy these days, but am dealing with it.

There are a couple more planned entries and I think we’ll call this a wrap.

No news yet

Frustrating:  I received a denial from the insurance company for the several thousand dollar genetic test.

Relieving: It was because of a coding error.

Frustrating: I called the social worker and told her this and that I have not heard back about results, leaving a voice message.

Relieving and Frustrating: She left me a message saying “no problem” regarding the coding problem, and said nothing about the results.

Frustrating: I called and left another voice mail asking her to check out whether the results had come in.  And now it’s Friday at 6:15pm.  SO I will have to continue the waiting game.

The doc thinks I’m extremely low risk for a positive genetic test result, but even so, I was told it would not be more than 2 weeks.  It’s been over 3 weeks now.  I don’t mean to whine, but when waiting for cancer or genetic test results, I’d take a clue from our elementary school.  One day when E was in probably 4th grade, the principal of the school called me at work.  The first thing she said was “Everything is ok.”.  This was an incredible relief to the sudden realization that my son’s school principal was interrupting me at work.  The “Oh by the way, the test was negative.” kind of presentation, is really not one I recommend in this arena.  BTW the principal was calling to tell me that  a child who was recovering from a bullying episode on the playground said out of the blue that “E….is always, always is nice.” 🙂

What can I do about it anyway?  Not much.  SO life continues to go on, and I’m pleased that it is what it is.